Dana DiBenedetti

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Evaluating elements of the care partner experience in individuals who care for people with Alzheimer's disease across the severity spectrum

Development and validation of a caregiver-reported numeric rating scale for measuring worst scratch/itch in patients aged 6 months to younger than 6 years with atopic dermatitis

Development of the cold agglutinin disease symptoms and impact questionnaire (CAD-SIQ)

Assessing what matters to people affected by Alzheimer's disease: A quantitative analysis

Technical review of clinical outcomes assessments across the continuum of Alzheimer's disease

Practice patterns and perspectives regarding treatment for symptoms of menopause: Qualitative interviews with US health care providers

Patient experience with efanesoctocog alfa: results from the XTEND-1 phase 3 clinical trial exit interviews in patients with severe haemophilia A

Development, psychometric validation and responder definition of worst itch scale in children with severe atopic dermatitis

Fitusiran reaches people's with hemophilia and their caregivers’ treatment expectations: Qualitative semi-structured interviews of participants of ATLAS-OLE trial (Interim analysis)

The patient voice: Exploring treatment preferences in participants with mild cognitive concerns to inform regulatory decision making

Correction to: Qualitative study: Burden of menopause-associated vasomotor symptoms (VMS) and validation of PROMIS sleep disturbance and sleep-related impairment measures for assessment of VMS impact on sleep

Qualitative study: burden of menopause-associated vasomotor symptoms (VMS) and validation of PROMIS Sleep Disturbance and Sleep-Related Impairment measures for assessment of VMS impact on sleep

Patient-reported disease burden: In-depth interviews of patients with CAD

Assessing patient experiences with prophylactic treatments for hemophilia A: Concept elicitation for gene therapy

Assessing what matters most to patients with or at risk for Alzheimer's and care partners: A qualitative study evaluating symptoms, impacts, and outcomes

Elevating the patient voice in type 1 diabetes clinical trials: A comparison of in-depth exit interviews and diabetes-specific questionnaires

Patients' perspectives of endometriosis-related fatigue: Qualitative interviews

Insights into patients' experience with type 1 diabetes: Exit interviews from phase III studies of sotagliflozin

Development and validation of the Axillary Sweating Daily Diary: A patient-reported outcome measure to assess axillary sweating severity

Humanistic cost impacts associated with immunoglobulin replacement therapy among patients with primary immunodeficiency disease in the United States